Gina Zanik

SpecialityCo-Founder & Executive Director at Rare and Undiagnosed Network
BiographyGina started her career in the entertainment industry. She then entered the world of the NBA and NFL. She now serves as the Founder and Executive Director for the Rare and Undiagnosed Network (RUN), a 501©3 nonprofit organization in Salt Lake City formed in 2014. Her three children, each of whom live with a chronic, invisible, and undiagnosed rare disease, continue to inspire, and motivate her to empower patients and their families with genomic information and community through advocacy, networking, and support. Gina is also living with a chronic, invisible, and undiagnosed rare disease. She is married to Justin Zanik, the NBA Utah Jazz General Manager. Gina has brought awareness to the public about the importance of undiagnosed and rare diseases through RUN’s NBA Initiative started in 2015. She was born and raised in Madison, Wisconsin. She graduated with a Bachelor of Arts from the University of Wisconsin – Madison.

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by Gina Zanik